Day 13 - Sunday

CB and I were at the 5:30 visitation.

Marshall has a 102 degree fever. His blood pressure is low, 108/56, he is sleeping like a baby.

I have to take my brother to Hobby, so will miss 9:30am visitation. Rick brought Marshall’s cartoon last night, what a special gift from a very very special family!!

1pm visitation-
Dr. Weber was here (I can’t stand him). He says that Marshall’s lungs are about the same. He then went into a dramatic soliloquy about how we don’t need to be asking specific questions. What a jerk he is. I guess he is of the old school that thinks that they are God, and we “mere mortals” have no business keeping an eye on things. Well, I have news for him…..

Dr. Daftarian expressed concern all the way around. I would like to see the Xrays they are giving him daily. Marshalls temperature is 101 today. She thinks it might be a sensitivity to a drug. Dr Lemos supposedly took him off of the Vancomycin and replaced it. I need to check that.

White Blood Cell count- 7.1

Ryan, Dad and I were there at 5:30. Marshall’s temperature is back to 99.6, and is not Tylenol induced. BP is 108/57, a little low, but ok. Marshall was out cold. The nurse just sucked out your lungs (clears goop out of lungs via the ventilator tube–sort of a manual vaccuum). Still BM-ing frequently–is like meconium.

I have to take Ryan to the (local) airport at 7:30, I am so sad that he can’t stay longer, but college waits for no one, and I know his father wouldn’t want him to flunk his classes on his account.

Mom and I are there at 9pm. Fever is high (103). Not a reaction to antibiotics??? Something is wrong somewhere….

BP 100/57, Heart Rate is 110 (should be under 100), and breathing is fair. They have turned the ventilator down, so Marshall is taking 3 breaths on his own, then one assisted by the ventilator. You can see on the monitor that his own breathing is much shallower than the ventilator breath.

Ask Dr…..
Lemos: Rash/Vancomycin?????
When are we going to change his ports? Fever related to this?

Spencer/Weber: Progress of lungs? What is he on for the pneumonia? Can I see the Xrays?

Daftarian: Do we (the kids and I) need to be checked for staph?

Ugh, so many questions, so few can answer them (damned HIPPA).

His fever was 102, 103 today. Could this be lungs?? His breathing seems a little more rapid and shallow.


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